Human connection within perinatal palliative care
Pregnancy is usually a time of great joy and hope; but when complications are identified, it can become a time of great hardship and uncertainty. Those experiencing such a pregnancy often feel lost and don’t know where to turn for support. This is especially true as they sift through information and are faced with decisions not usually required during pregnancy. Perinatal Palliative Care provides an interdisciplinary team approach to support families while they make loving decisions for their child. In this presentation we will discuss fostering human connection and helping families determine what is most important to them in this journey.
Wednesday, 14 September 2022
- State reasons for perinatal palliative care
- List the common diagnoses that lead to the palliative care decisions
- Describe the process of decision making in perinatal palliative care
- List ways to help families make memories with their babies
- List ways to provide care to the family as a whole
- Identify resources for perinatal palliative care around the country
Date 14 September 2022
Duration 1 hour
Time 20:00 – 21:00 Central European Summer Time (13:00 – 14:00 Central Standard Time)
Billie Winegard, MD
A physician for 10 years, Billie is a graduate of The University of Arizona College of Medicine - Phoenix in 2012. It was during this time that she discovered her passion for caring for and finding connection with kids and their families. This led her to complete a pediatric residency at Phoenix Children's Hospital/Maricopa Medical Center in 2015 and a fellowship in Pediatric Hospice and Palliative Medicine from Nemours Children’s Hospital in 2016. She had the honor of bringing Pediatric Palliative Care to central Illinois at the Children’s Hospital of Illinois before moving back to Arizona where she serves as an attending physician at Phoenix Children's Hospital and as a Pediatric Medical Director for Hospice of Valley. In these roles, she works closely with the interdisciplinary teams as the physician lead for the Perinatal Palliative Care Programs for both organizations.
Amanda Butner, BSN, RN
A nurse for 11 years, Amanda is a BSN with honors graduate of Chamberlain University in 2011. She began her nursing career in acute care working in an ICU, a role she held for eight years. It was while working in critical care that she discovered her passion for connecting with not only her patients, but their families as well. Becoming an Admission Coordinator at Hospice of the Valley allowed her to connect her passion for helping patients and families with an opportunity to support them as they transitioned back to the community. Amanda then accepted a role in leadership within the agency, a role she currently holds as team leader of Ryan House’s and Hospice of the Valley’s pediatric programs. In this capacity, she oversees pediatric home-based and inpatient hospice, palliative care, and perinatal palliative care. Amanda is a founding member of the Arizona Pediatric Palliative Care Coalition, which is dedicated to increasing access to quality pediatric palliative care programming and bereavement support throughout the state of Arizona. When not fully immersed in making sure the community knows about the robust resources available for children at Ryan House and in the community, you can find Amanda traveling, hiking, and spending time with her family.